Spain’s Princess Letizia met today with representatives of the Spanish Confederacy of Rare Illnesses (FEDER), with hopes of knowing the reality of the people that suffer frequently from little known illnesses. 
The delegation told the Princess of the main problems they face each day, such as the lack of investigation, the shortage of information, the few welfare resources or the need of the multidisciplinary processing. They also showed their petition of a Pact of State to guarantee the labor, educational, sanitary, and social integration of them affected by these illnesses.
In turn, the Princess of Asturias was interested in the state of the National Strategy of Rare Illnesses, set in motion last January 23 by the Department of Health.
“We have transmitted the need of an institutional commitment that favor the labor, educational, sanitary, and social integration of the more than three million affected. Besides, the urgent need to create has been presented a State Organization for the ER that coordinate all the actions relating to the ER”, explained FEDER President Rosa Sanchez de Vega.
The representatives of FEDER have thanked the Princess for this audience and they have valued it as an endorsement to the work carried out since 1999 by the confederacy, that groups of more than 140 associations in Spain and defends the interests for more than 900 different illnesses.
FEDER calculates that the 35 percent of the children that suffer one of these illnesses dies before arriving at the adult age, fundamentally by the absence of doctors specialized, adding to the scarce existing knowledge on the matter, that causes an excessive slowness in the diagnoses.
The Princess also met with about thirty members of the Spanish Committee of Representatives of People with Disability (CERMI), that have informed Letizia on the main initiatives prompted by this organization in favor of the more than three million and a half of disabled that live in Spain, 9 percent of the total population of the country.
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