The future Queen of Spain spoke at the Spanish Federation for Rare Disorders in Madrid Tuesday. There, she gave a speech, asking people to “work together” and not make those suffering from rare illnesses feel alone or isolated. 
Crown Princess Letizia told the senate that there needs to be a “daily support to the three million Spaniards with rare diseases and their families, whose testimony before the House are recorded in the daily ordeal of living.”
“Three million people with low-frequency diseases are many. Attention and commitment must be the same,” she also said.
Letizia, Spanish authorities and senators then listened carefully to the history of Illiana Capllonch, whose daughter suffered five years ago from one of these illnesses known as Takayasu.
Because of this diseasel, Illiana’s daughter went from being an anorexic girl and dynamic to be swollen and in a wheelchair because of the medication.
The terrible tragedy, which also affected her other daughter by the stress caused by the illness of her sister, ended with a chilling question, “Can I have hope?”
The head of the Spanish health system, acknowledged that many of these diseases have no specific treatment, but address them in a comprehensive manner is a concern of the government.
The Princess of Asturias preceded to then give out awards to those who are committed to the treatment of rare diseases. Among them, Moses Abascal, vice president of the organization and its foundation, recognized a life dedicated to rare diseases with the Award of Honor.
The issue of suffers of rare illnesses seems to be one close to Crown Princess Letizia’s heart. Last December, she met with these people and their families at the royal palace.
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